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| Wilson病患者自我效能与生存质量状况及其相关性分析 |
| Correlation between self-efficacy and life quality in patients with Wilson's disease |
| 投稿时间：2016-01-22 |
| DOI：10.3969/j.issn.1000-0399.2017.01.002 |
| 中文关键词: Wilson病 肝豆状核变性 自我效能 生存质量 |
| 英文关键词: Wilson's disease Hepatolenticular degeneration Self-efficacy Quality of life |
| 基金项目:国家自然科学基金资助项目（项目编号：81072738，81473535），安徽中医药大学临床科研项目（项目编号：2012LC-1002，2014lckf02004，2014lckf02016-02018，2014lckf02039） |
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| 中文摘要: |
| 目的 探讨Wilson病（WD）患者自我效能与生存质量状况及其相关性。方法 采用一般自我效能感量表（GSES）和世界卫生组织生存质量测定量表简表（WHOQOL-BREF）对2013年1月至2014年1月安徽中医药大学神经病研究所附属医院215例WD患者和相匹配的190例健康人群（对照组）进行问卷调查，了解WD患者自我效能与生存质量状况及其相关性。结果 WD组患者自我效能得分低于对照组[（2.344±0.4978）分vs（2.611±0.4912）分]，差异有统计学意义（t=5.407，P<0.05）；WD组患者生存质量总分低于对照组[（76.46±13.20）分vs（91.26±16.95）分]，差异有统计学意义（t=9.835，P<0.05），各维度得分均低于对照组（P<0.05）；WD患者自我效能得分与生存质量总分及各维度得分呈正相关（P均<0.05）。结论 WD患者一般自我效能及生存质量低于健康人群，其自我效能与生存质量呈正相关，即一般自我效能感越好其生存质量越好。 |
| 英文摘要: |
| Objective To investigate the correlation between self-efficacy and the life quality in patients with Wilson's disease (WD). Methods TheGeneral Self-Efficacy Scale (GSES) and the WHO Quality of Life Scale (WHOQOL-BREF) were used for investigation among 215 WD patients as WD group and 190 healthy people as the control group in order to study the correlation between self-efficacy and the life quality in patients with WD. Results According to GSES,the score in WD group was significantly lower than that in the control group (2.344±0.4978 vs. 2.611±0.4912,t=5.407, P<0.05). According to WHOQOL-BREF, the total score in WD group was significantly lower than that in the control group(76.46±13.20 vs. 91.26±16.95,t=9.835, P<0.05),so it was with all the items of the life quality scale (P<0.05). The score on the self-efficacy had the positive correlation with that of the total score on the life quality together with items (P<0.05). Conclusion The self-efficacy and life qualityin patients with Wilson's disease are significantly lower than those for healthy people. Their self-efficacy is positively related with the quality of life, which means the better self-efficacy they have, the better their quality of life is. |
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